I mean no disrepect

I mean no disrespect to my loved ones and friends but this is for those who have no clue as to how words are felt and heard.

I have cried because of the heartless and cruel things that have been said to me. It doesnt seem to matter what I want. It doesnt seem to matter how much pain I am in and how much more those comments have added to it. Every day, every single one in the last year, I have cried because of something said to me about my grief.

I wonder how I was to survive this stage. How I was to find a reason to want to even want to survive? I tried to will myself. But I couldnt. It was as if I was dead inside, even though my body belied that fact.

I began to think of all the hurtful things said to me the last year. As I thought of each one, I felt something stir inside. I realized it was anger. I grabbed onto that emotion, as if I were grabbing a life ring. I let the anger grow, even though it has scared me in the past year. As bad as I hate the anger, it’s better than feeling nothing.

Now, the rage has brought me here, to my keyboard. I feel, my fingers type. I realize that I have to get this out, or I will turn it inward again. I donât like the anger. But I like the depression even less.

Here is some of what I’ve had to hear the last year.

"It doesnt do you any good to talk about him." (Forget your dead child, stop making me uncomfortable.) I cant forget him anymore than if he were alive.

"Its O.K. to be angry, but dont be mad too long, its not good for you." (Be mad for a little while, but dont get ridiculously mad.) I am mad at everything and everyone. I am FURIOUS at things that I wouldnt even have noticed 12 months ago. I am told by others that my anger is normal, but I still dont like it. Especially when I see it getting stronger every day. I just hope each day, that I can continue to control it, instead of letting it control me.

"You have to get on with your life. (If you stop grieving and act normal, I will be relieved.) What do you think I am doing?! I wake up each day. I function through the days routine. Is that not going on with my life? If not, what is it? I am certainly not dead.

"You need therapy for your depression." (I dont know what to tell you to stop your grief, so get help to get over it.) Why do you think you have to help me? Why do I have to "get over it" within your time frame?

"Do something to distract yourself. You will feel better." (If you find a hobby or something, I wont have to listen to you cry about your child) Nothing, absolutely nothing, can distract me from the loss of my child. No more than you could be distracted from the loss of your right arm. My child was as much a part of me, as your arm is a part of you.

Now, the "you should have" have arrived.

I have so many people telling me how to grieve. Every day, it seems like someone is telling me I should be doing this or I shouldnt be doing that. I want to ask them, "What gives you the right to say that to me? Did I ask you for your advice?!"

Why is it, people wont hesitate to give you advice on a subject that no one wants to talk about? Few would speak out if they saw a child being mistreated in a store. Many would, and do, speak out when it comes to grief. In fact, they seem to make it their goal in life to get you to stop grieving as soon as possible, so they wontt have to hear your grief, see your tears and feel your pain. They wontt have to think to themselves, "That could be ME!"

Why cant I just grieve in my own way? Why???

I am supposed to "get on with my life." Isntt that what I am doing?! I wake up each day. I function through the days routine. I work. I cook & clean. I take care of my family. I talk to and visit my family. I do everything you do in your daily routine. Is that not going on with my life?

Am I not living because I dont go on outings? Because I dont smile and laugh all day long? Because I dont go to parties or dances? Because I dont go out to dinner and a movie? Because I dont want to learn something new? Because I dont want to set a big goal in life to work towards?

Am I not living because my heart is irretrievably broken? Because my arms ache to hold my child? Because my eyes cant hold back the tears that come forth daily? Because I want my child back more than anything in the world? Because I love and miss him with all my heart? It is my pain that tells me every single minute of every single day, I am alive. I feel the hurting that being alive causes me. How can I be not living?

Because I am not living "normally," thats why.

Because I am not living "normally," I am considered to be grieving too long or too hard. If my child was still alive, would I be chastised for loving him too much and for this long? No! If my child was still alive, would I be told to forget him and not talk about him? No! If he were here, would I be told to not dream of a future with him, look at his pictures, or remember him? No! If he were alive, would I be told to not worry about him and cry if I missed him? No!

I dont stop total strangers in the store and tell them, "Live your life as if there were no tomorrow. Grab your child and tell them they are the most important person in your life. Spend every spare second of your life with your child, because they may not be here tomorrow. Dont take anything for granted. Not a single I love you, not one hug. Play with your child. Listen to them when they talk to you. Have conversations with them. Learn about them. Encourage them. Be supportive. Help them in any way you can. Love them like their lives depended on it." I dont tell people that, even though I want to shout it to the world until everyone who has a child, hears and listens to me. Why I dont tell them what is in my heart? Simple.

Respect. I respect their right to live their life within their beliefs, needs, wants and feelings. Theirs. Not mine imposed upon them. Theirs.

Why cant I get the same respect?

If you see yourself in any of the above, I want you to stop and please, think about what effect your words will have if you say them to someone like me. We do hear what you say. We do take it to heart. Your words can and do hurt, more than you’ll ever know.

We who have lost a child, balance precariously on a fine line between hanging on and letting go. If you care, really care, dont make us lose our fragile grip.